PWS Links

PWS-related Groups and Web Sites

• Foundation for Prader-Willi Research (FPWR) - FPWR's dynamic parents and supporters are working vigorously to raise the funds for research into vitally important yet under-investigated aspects of PWS and could always use more support, so please visit them and consider joining them. I did. :-)
• PWS Notes - Excellent web site by "PWSMom" with information about the early interventions that can contribute to significant improvement in how PWS manifests.
• HolisticPWS e-mail group at Yahoo Groups - Very active and supportive group of parents exploring the use of early interventions such as nutritional supplements, body work and other innovative approaches to PWS.
• Prader-Willi Syndrome Association of Colorado - originators of the Still Hungry for a Cure "brand" and an excellent resource for Colorado families.
• Asociacion Madrilena Sindrome de Prader Willi - en Espaņol.

Autism, Pervasive Developmental Disorder (PDD), etc.

• Healing Thresholds - excellent site updated daily with new research and articles about autism-spectrum disorders, including information about sensory integration, nutritional supplements, etc.

Western Medicine (sites providing reliable information according to the Western medical perspective)

• MedlinePlus - U.S. National Institutes of Health site with medical encyclopedia and dictionary, drug and supplement information, health news, and more.
• PubMed - searchable database of 16 million biomedical journal abstracts.
• NCBI Bookshelf - Full-text books on a wide variety of medical topics, including genetics, biochemistry, endocrinology and alternative medicine.
• Diseases Database - cross-referenced index of human disease, medications, symptoms, signs, abnormal lab findings, etc.

Genetics

• Genetics Home Reference - a web site of the U.S. National Library of Medicine.
• GeneTests.org - medical genetics information resource funded by the U.S. National Institutes of Health.
• GeneCards.org - ssearchable human gene database.
• iHOP (Information Hyperlinked Over Proteins) - excellent resource for exploring phenotype and physiological relationships.

Extended Breastfeeding

• Thoughts on Breastfeeding - web site of anthropologist Kathy Dettwyler, leading researcher in cross-cultural studies of breastfeeding.
• World Health Organization section on breastfeeding
• Extended breastfeeding at La Leche League
• Extended breastfeeding references at Kellymom.com
• Sustained Breastfeeding article at Australian Breastfeeding Association